National Hispanic Heritage Month (celebrated Sept. 15 – Oct. 15 to correspond with the independence of many countries in Central America) honors Hispanic history, culture and contributions. For more tips on living your best life during and beyond cancer, check out Cervivor Founder, Tamika Felder‘s book, “Seriously, What Are You Waiting For? I want people to know that a cancer diagnosis in your 20’s and 30’s is difficult to navigate, not only during treatment but as a survivor. Whenever or wherever Teolita was given an opportunity to speak, she would use that time to raise awareness about cervical cancer – considered a silent killer! The list can go on. After cancer, Emily didn’t realize she even had an advocacy voice until she attended her first Cervivor School in 2016. She went on to become the director of cancer chemotherapy research at New York University Medical Center and was appointed to the President’s Commission on Heart Disease, Cancer, and Stroke by President Lyndon B. Johnson. We have to do our part so we can make this a reality for the next generation. Those first months of The After are among the hardest cause you want to ‘bounce’ back and jump back into life. Staying hydrated helps your body start to burn calories faster, which is vital when you are trying to shed body fat. Todavía estoy esperando el próximo envío y la finalización del primero. Nobody else should have to go through what we went through,” says Maria. It is a space for inspiration, motivation and accountability as we learn to navigate our way to health after a cancer diagnosis. Plug into the learning and mentorship of other Cervivors. I can relate it to different strains of the flu or the cold, so that people can grasp a little bit better idea of it. Lisa was a true champion for prevention. Chair of the National HPV Vaccination Roundtable, Dr. Noel Brewer has given hundreds of talks at scientific conferences and meetings across the globe. I’m thankful I had a network of friends who were also nurses to reach out to for information. I sit on the Virginia Immunization Taskforce. During this time I want to hear from you. Our medical teams are our heroes, and, in a way, we can be theirs as well. Read her Cervivor story. Certainly not the type of alone that she felt when she received her cervical cancer diagnosis. Advancements in the understanding and treatment of cervical cancer are inextricably intertwined with Black History Month. This was a woman who lived her life fully, even while dying. What Do Black History Month and World Cancer Day (Feb. 4) Have In Common? Surgery was a breeze, and my doctor even showed me Porsche so I could thank her one last time for all her hard work. Karen North lives in Liberty, Missouri. Connect with your state’s screening programs. You left this world long before I had planned for you to go. If I’m having a “really bad flare up,” I am supposed to keep my legs elevated all day. The 26-year-old Taylor, an emergency medical technician who had been studying to become a nurse, was roused from her bed by police who came through the … Morgan continues to advocate along side Above and Beyond Cancer, Bras for the Cause – Madison County, the Iowa Cancer Consortium, Iowa Department of Public Health, and Des Moines University. In short, they questioned how I could be out and about and yet still be so “sick.”  I have since processed it, and I realize that anyone that questions my pause from teaching does not know my struggles or my story. They did fundraisers to help with her medical costs. I am most thankful for my body. Sophia Burset (born Marcus Burset) is an inmate who was incarcerated at Litchfield Penitentiary. Through the years, there have been many ways I have advocated: free cervical cancer screening events, health fairs and interviews with different media outlets. Cancer had already In 2017, California was experiencing literal storms and relentless rainfall. There is so much of you in each of them. She planned on surprising me with them but when we found out about the reoccurrence she sprang into action and had the women in my family take photos to show their support. Hispanic and Latino Americans amount to an estimated 17.8% of the total U.S. population, making up the largest ethnic minority. We know nonprofits are vital to communities and often help build resiliency skills, raise awareness to specific issues, and make change happen. My doctor was extremely helpful in giving me materials and support, but I felt so lost. It was March 28, 2010 and it was a radio interview in Spanish for 95.9 FM El Poder Latino (The Latino Power). The stress on interpersonal relationships, the increase of depression and anxiety, and the general fear of the unknown for our future. Our Key Take-Away: Our Stories Have Never Been More Important. There are always things to be learned. However, statistics show that even though millions of Americans make resolutions, less than 8% actually stick to them. I was proud that my daughter – always a fun and popular girl who loved going to concerts and music festivals – had such strong friendships and supportive friends. When you can no longer do such simple functions, you learn what matters in life, and what really doesn’t— like the ten extra pounds gained from coping with a very scary time. In making the disease real and un-ignorable and un-stigmatized. So let’s put this on our holiday table: is gratitude easy or tough for you? I’m taking a knee right now for myself. Prior to this trip, my experience with Cervivor was online chats and questions with our late lead ambassador, Erica, who actually introduced me to Cervivor. This was very hard for me because I was so used to go, go, go but it’s so important to let your body rest and repair. I’m a mother and a nurse. “On Wednesdays we wear Pink”… wait, what? Unfortunately, my cancer story didn’t end there. I’m pissed off about that! We all know how difficult last year was. When Chanel had gone through her cervical cancer treatment, her mother had been her rock of support. Worse is that I keep losing friend after friend to cervical cancer. Rarely, an allergic reaction to a vaccine component or ingredient can occur – but that is true of all vaccines and medicines. Tastes AWFUL but she was right, it works better. It took a while for me to feel ready to fight back. Hysterectomies. This was one of the proudest moments of my advocacy world. I now have more time for homework, I get to exercise, spend time with my dog, etc. I didn’t realize that two weeks after she started hospice, she would be gone. Patti Murillo-Casa. I celebrate each day and see it as a gift given to me like a Christmas present. It was a Friday, and I joked that this nightmare was ending on Friday the 13th. I wanted my advocacy to be geared towards mothers – I wanted them to know that their life and checkups are equally as important as their families. I am a real person and this is my life. We’re thrilled to be sharing them here for Medical Team Monday. One that feels tight-knit because we know that through our voices we have the power to ignite a conversation and to help others. I loved it when they said to wear teal & white on Tuesdays. We all bond with the same mission to end cervical cancer and to make our generation the last one to fight this disease. I walked the long way through the parking lot, sobbing. The women featured in this video are beautiful and real. Certain “high risk” types of HPV cause the cells to progress from a pre-cancer stage to invasive cancer, but that progression can be slow so there is ample opportunity to capture cancer through screening before it develops. Patti is a Cervivor Ambassador and Cervivor’s Wellness Instructor. I wanted to have a video that I would be able to look back on,  especially for my girls. I’m sitting here reflecting and it’s pretty clear to me: I never thought I would be in a world pandemic crisis in my lifetime. I’ll say it again: it’s okay to not be okay. But, remember that we are insanely resilient. She lives in the rural state of Iowa where she continues to advocate tirelessly. I knew enduring, and surviving, two battles with cervical cancer by age 31 was bound to have a greater purpose. She even used her birthday as an opportunity for education and fundraising by creating a campaign and rallying her friends to “Help celebrate my 48th birthday by joining me in walking, running or cycling a total of 48 miles during the month of October!” #48MilesToEndCervicalCancer. In the program, we were trained rigorously. But it is she that I owe a debt of gratitude to, for inspiring me to keep up the fight. We hope you will use #GivingTuesdayNow to support Cervivor and ensure that we can continue our mission of supporting women affected by cervical cancer now and in the future. I carry them with me. We also have the superpower of being truly vulnerable which allows us to deeply connect with others around us and call them to say “I’m not ok, I just need to cry.” And cry I have. And last, but certainly not least, to continue raising awareness about our greater mission: “Ending cervical cancer is within our reach.”. We went live yesterday to let the cat out of the bag… We have new merch in the Cervivor Shop! The HPV vaccine can protect against these cancers, as well as protect against genital warts (which are also associated with HPV). Their care has always been exceptional but it felt broader this time. Remind women to keep up with their annual women’s health visits, including Pap and HPV tests. Not every presentation or interview has been perfect, but I can honestly say that I never did it for the accolades. Even – and especially – amid the COVID-19 pandemic we should continue to educate people about the HPV vaccine and remind them to ask for it for their daughters and sons, and/or for themselves. For example, in South Carolina, NBCCEDP has brought screening to underserved communities in collaboration with nonprofits and faith-based groups including The Best Chance Network and Catawba Indian Nation. She showed up every single day of Cervivor School. Teolita did it well! @GovAndyBeshear joined Breonna Taylor's family, lawmakers, and community activists this morning to sign #SB4, a version of #BreonnasLaw. Holding down food. A ride that is full of up hill battles and twists and turns at every corner. Yet her passion, her fight, and her spirit live on in Cervivor. Those feelings have the most power over you when you keep them inside. This became my “go to” group for information, help and support. Everything around us was falling apart with no end in sight. ~ Tracy C. Listen to your body and resting whenever needed. How are you surviving quarantine? He’s one of the most cited researchers in the world. Asking for help isn’t a sign of weakness, it takes guts and if that’s not strong, I don’t know what is. Today we are remembering a shining light within our community, Holly Lawson. In her upcoming interview with Oprah Winfrey, the 54-year-old actress recalled that there was a massive payday attached if she chose to stay with the series, where she starred as nurse Carol Hathaway. Now, I have taken on two more roles. 1 Personality 2 Physical Appearance 3 Biography 3.1 Before Litchfield 3.2 Season One 3.3 Season Two 3.4 Season Three 3.5 Season Four 3.6 Season Five 3.7 Season Six 3.8 Season Seven 4 Relationships 4.1 Romantic 4.2 … Stories motivate. Master’s program with the University of Iowa School of Social Work. There are a number of organizations addressing the unique needs and challenges of young adult cancer survivors: Stupid Cancer, the Alliance for Fertility Preservation,  and the Ulman Foundation. It is very common among women like me who have withstood grueling treatments for cervical cancer. I had hoped Caitlin would have more time to do some stuff before she died – to travel and experience the world. All people are monitored for 15 minutes after having the vaccine. She also volunteers with the American Cancer Society Cancer Action Network, lobbying for the implementation of cancer-related policies that will help patients and their families, and the Alliance for Proton Therapy Access. As much as Erica had prepared us for “this” — we weren’t really prepared at all. In this uncertain time of the COVID-19 pandemic, the whole world is getting a taste of what it’s like to be threatened by their environment, stuck with their worries and no sense of control over any of it. heads Cervivor’s Latina advocacy efforts. Colostomy = An opening in the abdominal wall in which the end of the colon is brought through the opening to form a stoma. Please tell us what you think about this story, How the fight for justice for Breonna Taylor continues through art, The Fight for Justice: Simon and Schuster blocks publishing book by officer involved in killing of Breonna Taylor, Julián Castro was the only presidential candidate with a police reform plan heading into the 2020 election. It has been 11 years and 2 months since I was declared cancer FREE, and I still have them. HPV Roundtable: https://cervivor.org/the-national-hpv-vaccination-roundtable-2018/. My love for advocacy, cancer prevention, and macro-level social work falls right into place within the nonprofit world. This song speaks to anyone who has faced deep hardships. My sister told me that (when I was venting to her!). Many of us are navigating yet another “new normal”. When I was young, I was a Girl Scout – which meant selling Girl Scout cookies (of course)! I was no longer alone. Henrietta Lacks, through her children and grandchildren, is continuing to have impact and address disparities. Click here to view. Plain and simple. I wish I had done that when I was told my symptoms were “just hormones.”  If your doctor doesn’t take your concerns seriously, find one who will. I was forced to refocus my efforts, and the idea began to fully bloom. Create a “What If” journal. Here in the U.S. it is already recommended for females and males ages 9 through 45 to prevent cervical, vulvar, vaginal, and anal cancer as well as genital warts. The diverse paths of our cancer journeys spoke volumes to the ears they fell on. Be sure to check out our January CCAM calendar and participate with us all month long. Biopsies. I had a community and I felt like I belonged for the first time in a long time. As a group, we will work on two habits for the month, but if you want to add a third one on your own please do – just remember to make it small, sustainable, specific and achievable. Cancer still exists even during a global crisis. Research shows that younger people create more antibodies to the vaccine than those aged in their late teens. Starting the session, I was eager, slightly nervous, yet super excited. But she powered through. Time sure has flown right on by! Honduras se jacta de hermosas playas, bosques, montañas y gente. We needed someone with enthusiasm & passion and were very fortunate when they suggested Tamika who was just completing her registered nurse qualification and about to start her advanced diploma with Gray Clay. It helped me – become such a strong, informed advocate – eventually leading me into winning several awards. Una colostomía es una abertura en el intestino grueso que lleva un extremo del colon a través de una incisión a la pared abdominal. It sets the stage for the important work that will follow.”, “To hear about the diagnosis and that awful waiting period. We think one of the best ways to do this is by expanding access to fertility preservation, like sperm and egg freezing, through better insurance coverage,” says Joyce Reinecke, Executive Director of the Alliance for Fertility Preservation. Later during Teolita’s journey, I had to add the role of caregiver. Honduras boasts of beautiful beaches, forests, mountains and people. Her story of patient-to-advocate / survivor-to-Cervivor inspires and mentors not only patients and medical communities, but anyone who has struggled with obstacles in their life. I want women – and mothers especially – to know that their health and their checkups are equally as important  as their families’. Check out all the cute items and be sure to go get your swag, ASAP! I was in awe. I want people to know that it is okay to set boundaries for yourself and to not feel guilty about it. Karen North lives in Liberty, Missouri. They connected, chatted and befriended each other. We closed up shop pretty immediately, and jumped into our all too familiar bubble at home; sidelined once again from the world due to health concerns. So I prayed for time. Radiation therapies. She became one of our most dedicated patient advocates. From her hospital bed and then from her hospice bed, Erica was still telling her story when she could barely move, barely talk. Let us know what type of virtual events you’d like to see from our organization. When Samantha R. stumbled across a study suggesting that hysterectomies may cause memory problems, she clicked, read, and shared on our I’m A Cervivor Facebook group, kickstarting a dynamic discussion. We understand that it can save lives. In the days leading up to Cervivor School, she hadn’t been feeling well and probably shouldn’t have flown from Indianapolis to San Diego. To engage in discussion and shared decision making with their healthcare team. Judges are now required to legibly sign when approving them and an EMT must now be close by during execution of the warrant. I still didn’t have health insurance, so I didn’t go to the doctor. I started off with buying printable iron on sheets and made one shirt. So share them. Social workers are a common thread amongst nonprofits and are community-based professionals. HeLa cells have helped change the course of modern medicine, contributing to medical breakthroughs including the development of the polio vaccine, and treatments for cancer, HIV/AIDS, leukemia, and Parkinson’s disease. She was committed to helping others by speaking, educating and advocating for HPV and cervical cancer! Many have programs to fund HPV vaccination, even if it is not a state requirement. ~ Laurie, Best advice from my OB was to take the misoprostol orally not vaginally. Let’s enhance the conversations about HPV today on International HPV Awareness Day, and every day until the virus is destigmatized, HPV vaccination is broadly implemented and cervical cancer is eliminated! I am proud to say that I am a Cervivor Ambassador. While HeLa cells were critical to the science that led to the HPV vaccines that have the power to prevent cervical cancer, today Black women in the U.S. bear a disproportionate burden of cervical cancer. I honestly don’t remember Tamika’s exact question that day at Cervivor School, but I immediately remember my response, “On Tuesdays, we wear Teal and White.” Thanks Matthew, for the quote from so many years ago!! Know Your Existence. You must be your own Advocate. One of the activities I participated in at the 2019 Cervivor School was to write a letter to a woman who was newly diagnosed with cervical cancer. This growth gave me a sense of purpose as an AYA cancer survivor that I needed. From not working or doing basic chores to watching as others took care of my children daily. In Nevada, programs with Women’s Health Connection increased screening numbers by 30%. Developing cancer therapies with lasers and nanoparticles. Let it all go. The tides and winds headstrong. Carol & Cervivor have put together a helpful guide for those undergoing ostomy surgery. I was alive, and ready to live my best life. I want to encourage all parents of boys and girls to make sure their kids get the HPV vaccine. Remember, there will always be someone that needs to hear your story. I did not find a person to talk to about it. Then I found some cancer awareness charms online and incorporated those. Most types of HPV don’t post a health risk and don’t cause symptoms, so many people don’t ever know they have it. I’d do it a thousand times over. We are all motivated to ensure that no one else has to go through what we’ve gone through. Shawna Christy, 46, was diagnosed with cervical cancer in 2005. That sounds right up our alley as Cervivors! We dove deep into the biopsychosocial aspects of humans. Things will get better in time…and sometimes time…just needs time. He’s so big now. We’ve got this. I mainly daydreamed about family gatherings with yummy meals, or spending time out in nature. Educational activities? I had credible people I could call. They’d all grown up and I had started taking better care of myself and my health. “You are a moral voice on cervical cancer and all of the ways it affects lives. I didn’t know that I needed it. Mary Eliza Mahoney (1845-1926) knew at a young age that she wanted to be a nurse. If you are unable to donate, please share our fundraising efforts. Join me in honoring Erica today by creating – or adding to – your own living life list. “I want my story and even my pain to inspire others.”, Holly & Dilators: https://cervivor.org/dilators-after-cervical-cancer/, Cancer Broke My Cup: https://cervivor.org/cancer-broke-my-cup/. To me this is a no-brainer: when a person has a chronic medical condition that they manage every single day, it does NOT mean they are supposed to stay in bed for the rest of their lives. You’d be proud of our recent Cervivor School graduates, our Cervivor Ambassadors, our story-sharers, and the members of our online communities who post and share and support in an ongoing conversation that serves as a lifeline for so many of us. Despite this pandemic, we’ve creatively found new ways to connect, educate and support each other. She’s also shared her story and experiences on Presidential Cancer Panels convened by the White House. This year she is taking time off from teaching first grade to focus on her health to better manage her pain. I am proving my naivety as we are not bulletproof from everything and we have several issues at stake. Karla Chavez vive en Honduras, es ingeniera civil y entusiasta de los amigurumi. Ever since, I have this new fight in me and the fire gets stronger and stronger each day. I was inspired and motivated but most importantly I did not feel alone anymore. If you haven’t yet, add your story to our Cervivor Stories. It’s where I participate in countless Zoom calls, and also where I’ve been sharing meals with my family. to cervical cancer advocacy and support. ACS may have new statistics, but we have the stories. I continue for me. Dr. Georgia Rooks Dwelle (1884 – 1977) attended Spelman College and in 1900 she became the school’s first graduate to go on to medical school. Contact your doctor and ask for contingency plans for any upcoming visits/treatments, Reach out if your emotions get the best of you. Chanel attended, armed with teal and white bracelets “to give out and to bless women with.” She, Teolita and Deborah – another Cervivor in the area who she quickly bonded with – took a photo together, smiling proudly about the successful event at which they were able to share their stories and educate about cervical cancer prevention. It was like opening a birthday present! mission. When someone speaks who has had direct experience with cancer, it clears out the mental clutter. I will keep on living and enjoying this life that I have fought so hard to enjoy. I want women to Know Their Existence matters. Let’s take a moment to celebrate these individuals and their impact. We are voices that roar instead of whisper. The law only permits no-knock warrants in the case of “clear and convincing evidence” that the crime being investigated “would qualify a person, if convicted, as a violent offender.”, . It should not be a taboo or something someone cannot discuss. Get the HPV Vaccine for Yourself and/or Your Kids, Keep Up with Pap & HPV Testing to Catch Any Early Pre-Cancers. Brewer. Those three crucial years could make the difference between a treatable versus terminal cancer. Like Tarrence, who so honestly and openly shared the challenges of getting from one day to the next in his blog post, What did I do as a caregiver? Ese mismo día, mientras estaba deprimido por todo el lugar y haciendo que todos se sintieran miserables, recordé que todavía estaba aquí. To listen to the needs of our community and bring support, resources, and programming to fulfill those needs. That was something we only learned about in history books, right? She had us write down our “why statement” and then from there she wanted us to come up with three words that summed up our why. The vaccine prevents HPV infection – and, as a result, prevents cervical cancer as well as prevents against other cancers related to HPV such as penile cancer, anal cancer, vulvar and vaginal cancer. Pedí mis suministros habituales, no estaba preocupado, me había abastecido. At Cervivor, one of our mantras is #StrongerTogether, and this has been another instance of the truth in that statement. Just breathe and let’s move forward. Write a blog post about your experience or your advocacy or about a milestone or simply a memory or reflection and send it to info@cervivor.org. That was better for me and my family. It’s long, it’s miserable, it’s anxiety-inducing. I had no kids. They organized meal drops. Andrea Bonhiver lives in Minneapolis with her husband and dog. Because the “HeLa cells” used in the scientific research that generated the HPV vaccines were from the cells of Henrietta Lacks, a Black woman who lost her life to cervical cancer in 1951, at age 31. An idea began to form. It was unpredictable. That’s really all anyone can ask of you, and it’s literally all you can do…Through this experience, I learned a lot about what it means to really be with someone. She died December 27th, 2018 from cervical cancer. Even though she was running around making sure all the behind the scene details were perfect, she still took the time to hug me (pre-covid obvi ) and made me feel so welcomed. Why is it especially important now to keep up the conversation about HPV vaccination? Our time to say goodbye came way to soon. The legislation sought by the Taylor family and by protestors, known as “Breonna’s Law,” would have banned all no-knock warrants, outlined penalties for officers who misuse body cameras, and mandated drug and alcohol testing of officers involved in “deadly incidents.”. She’d gone looking for hope and information “in the blue light of the internet” but found mostly “scholarly articles, or scary ones about the invasive and painful treatments I might need, or about survival and recurrence rates. While less than 1% of abnormal Paps result in a cervical cancer diagnosis, up to 1 million Paps find early, potentially pre-cancerous cells that can be easily removed before they progress. It’s by no means ideal, but is the current reality. It was downright overwhelming at first. Be vigilant about seeing your gynecologist or family physician for Pap testing (which looks for abnormalities caused by HPV) and HPV testing (which looks for the presence of the high-risk strains on HPV). At the end of the day, they know what boundaries I have set in place and they honor them. “I lived with these feelings of anxiety and uncertainty on a pretty constant basis for 2 years: ✓  Living with something that is potentially life-threatening. It was painful as a mother to see my daughter suffer. HPV vaccines have been available in the United States since 2006. Do your best. As a survivor, I am epically, hugely, ginormously (seriously!) Fast forward 30-some years…my willingness to do something uncomfortable (and my mother’s insistence that I do so) has paid off. We focus on developing various programs and events for our community based on its current needs. Our voices and our stories and our advocacy will be important to move this bill forward. I searched every part of my soul to come to grips with what I felt was the end of my life. The Latinos who flipped Arizona may have been systematically undercounted in 2020 Census. The experiences go on and on, and they will be forever ingrained in our memories. That was the first thing I learned about a colostomy. I’ve dealt with a plethora of side effects: For a whole month after treatment, I had what felt like a never-ending UTI. It cannot be something that you already do in your daily routine. Let’s create a national goal to achieve cervical cancer elimination, a strategy for the U.S. to accomplish this goal and a revision of the Healthy People 2030 objectives.”. Many times nurses will put their own personal needs behind everyone else. Go easy on yourself. Boundaries people, boundaries. Our bodies know the score. This legislation would, if enacted in the future, address many of the education and health equity needs surrounding cervical cancer prevention. Having this support is extremely helpful. Move your body for 10 minutes a day. I do not have any documentation about my journey. I have seen this community grow and thrive since I joined in 2017. 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